Well I jinxed it in my previous entry.... as I probably should have guessed. Friday morning I trundled off to my appointment with Tina and was told I was neutropenic. (Neutrophils at "0") I didn't feel too bad. I was given fluids again and had my CVC dressing changed. We made a bet that by Saturday evening, I would be in hospital as my "C-Reactive Protein" results were at 44. Which meant I had an infection brewing. We went home and Dirk went off to work for a couple of hours. I crashed on the couch and fell asleep for a few hours. From around 3:30pm my temp was up over 37C and didn't look like coming back down again. The heater was pumping but I wasn't hot..... it was time to go into the ER !!
I'd been given a "ER Free Pass" which meant I didn't have to queue, and I would be treated as a VIP. It worked a treat, and as I passed a woman screaming because she wasn't allowed to have a smoke in the ward, I was given a bed away from everyone else and had a nurse assigned to me. It was just like the old days walking to the front of a queue at a club and walking straight in and up to the bar !!!
Daily View |
Saturday (D+9) was my worst day.... I had a temp all day, spiking up around 38C - 39C most of the day and I was in a state. Shivering, diarrhoea, no energy, headaches, stomach ache.... awful. The whole day was just a blur (bluurrrgghhh) Saturday night I slept a little better - even with the seven extra blankets I had on me - and Sunday I started to lift a little. Dirk & Jo came in every day and sat with me. Even if I wasn't talking much, they sat and were just there. I have cravings for either a drink or food which last only once, then the thought of eating or drinking it again, makes me nauseous. So Jo & Dirk have been running backwards and forwards trying to manage my cravings. The hospital food, unfortunately, lived up to expectations and was absolute shite. I'm hoping I will have been able to lose those extra few kilo's as I haven't been able to stomach too much !! Rubber Omelettes, brussel sprouts (boiled to within an inch of their little cabbagey lives), lentil soup (no seasoning as I'm not allowed) ..... it's been tough !! Being neutropenic means you have to follow a Neutropenic Diet so there are certain things I'm not supposed to have - like salad.
Anyway..... like I said, Sunday was better, Monday (D+11) was better again. I also started to see my Neutrophils go up on Monday - they were at 0.58. This was good. It meant my white blood cells were re-generating. Which is basically your immune system. When it gets over 1.0 I was looking at going home.
And so after spending the day yesterday with my sis, playing scrabble, having "mum moments" watching TV and drinking cups of tea, I spent another slightly restless night ( I've discovered I don't sleep well in hospitals) in hospital. It's fine of you are a newborn and need to wake up every 4-5 hours but when you're 42 and don't, it's just not the same !! Ob's and blood tests every 4 hours.... pills, fluids, beeping machines etc etc..... yawn !!
My CVC that came out of my neck !! |
And so.... I am home. With my family and it feels great. I was able to eat a nice tea - thanks Jo - watch Big Brother - thanks Dirk and I am now about to sleep in my own bed (with ironed, yes ironed "fresh sheets, fresh sheets" - thanks Jo)
It doesn't get any better than this.......
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