Sunday, 5 August 2012

.......Love is the answer....At least for most of the questions in my heart..... Like why are we here? And where do we go? And how come it's so hard? ...... It's not always easy and Sometimes life can be deceiving....... I'll tell you one thing....... it's always better when we're together.....

Looking forward to seeing my sis on Wednesday....
I'm in the middle of a Jack Johnson-a-thon .... and so I guess, feeling pretty alright so far too.
It's Sunday.... Thursday was implant day and my days have been relatively good. If I jinx myself by writing the following then <insert "F-style" curse word here>
Anyway here goes.... so far, no temperature, the anti-nausea drugs are keeping things at bay, no diarrhoea... the worst so far is the irritating Dracula's neck jewellery (Thanks Nigel - liked that one !!). But even that is beginning to settle and not be as annoying.
OK Coldplay-a-thon now..... JJ was getting a little melancholy for me......
I've been very careful so far. Bucket loads of anti-bacterial hand wash, lots of water, hydrating fluids and no contact with anyone or thing. Although I have managed a couple of trips to the park with the pups. I've also been sleeping well(ish). The olympics have helped too. Live streaming on the iPad on the middle of he night is great. I'm back on the Dexamethasone so that may explain some slight insomnia. 
I'm now on a neutropenic diet too. And it looks like I'll have to stay on this for the unforeseeable future. As I now have no immunity I won't be able to combat food bacteria. I'll have to start from scratch with my body. One of my biggest disappointments would have to be that we will not be able to visit "Sizzler" for the next year !! Oh woe is me..... how will I survive ?? !! No salad bar or all you can eat soft-serve is allowed to pass my lips !!! Looks like it will just have to be fine dining establishments and home cooked delicacies. 
I have a bowl of drugs I have to take every morning..... 
  • Dexamethasone - Anti-sickness 2-3 days after chemo (all good now)
  • Metroclopramide - Anti-sickness 20mg 2 tabs up to 4 times per day
  • Pantoprazole - Antacid (and for nausea) 40mg 1 tab per day
  • Fluconazole - Anti-fungal 200mg 1 tab per day (for the foreseeable future)
  • Valaciclovir - Anti-viral 500mg 1 tab per day (for 3 months post transplant)
  • Filgrastim - 300mcg Injections daily in evening D+5 onwards
  • Gastrostop - 2mg Once it starts.... max 8 per day !! eeuww
I have my first check up appointment on Monday morning. I'm hoping Tina (my Nurse) will be very happy with me. 
My beautiful niece - who's birthday it was yesterday
And so back to the couch and the relaxing.... my Blue boys are about to start. I haven't picked them to win and after the WCE performance yesterday I'm hopping for some winning vibes in the house. I must also say that as my first year as an Aussie I'm a little disappointed at the performance of the number of Olympic Gold's for Australia!!! Go Team GB !!! Just saying......

Oh yes one last thing.... we've booked our wedding venue. Looking forward to Jan wedding......

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