On 24th January 2012 I was diagnosed with Multiple Myeloma. This came as a complete shock to me and my family. But once diagnosed I decided to put fingers to keyboard and record the journey. Hopefully helping anyone out there understand the side effects of the chemo and drugs involved, but also to be able to share my feelings with my family and friends who are spread across the globe and can't be by my side......
Thursday, 2 August 2012
And if a double-decker bus.....Crashes in to us......To die by your side......Is such a heavenly way to die........And if a ten ton truck........Kills the both of us To die by your side........Well the pleasure, the privilege is mine........
So I'm lying here as we chat, and my old (new) stem cells have been put in !! Omg !! What a feeling !! ...... Actually there's no feeling at all. Just lying on a bed with a drip hooked up. I've had 2 liters of saline for hydration, phenergan (anti-histamine ... To stop the preservative in stem cells from reacting with me) my stem cells ( that smell like creamed corn) anti-biotics -Vancomycin to prevent infection.... And after that I stopped retaining information !! And I keep needing to go to the toilet !! Too much information ?
I woke up this morning feeling a little nauseous. But after downing a coffee, 2 x pramin, 2 x dexamethasone and an pantoprazole (ant-acid) I began to feel a bit better. Yesterday was a good day. No side effects to write home about. Just the frustration of the cvc in my neck. Uncomfortable and a bit itchy from the stitches. I'd only been able to sleep about 2-3 hours on Tuesday night. But last night managed to catch up with about 6-7 hours. Nice !!
Straight home from here and onto the couch... Will see what's on tv and wait for the drugs to kick in...... No visitors for the next few weeks. We even cancelled the cleaning lady !! WTF !!! Luckily on my "take home notes" it actually says no cleaning or gardening !! Haha ... Fabulous I say !! Now if we could just get the dogs using the anti-bacterial hand/paw gel i reckon we'd be good to go.
I've been told I'll get very tired soon, so will pause for now and catchup later.
This is all I have at the moment..... Just saying !!
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Do what you are told, behave yourself and remember we are thinking of you. love Jane, Nigel and Amy
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