Quick update .... all good.
Had my 3 monthly check up and Zometa on Tuesday. Bloods are all normal. Nothing to concern anyone. I am the favourite poster child of Dr Ben (well I think I am) Still have to have a Zometa infusion every 3 months. The effects are hitting me today. Just a weird feeling in your bones. Nothing that can really be described. Just weird.
Other than that, loving summer, my pool, eating outside every night, warm summer days. Life is pretty good. Even the summer storms have been amazing.... better than the Australia Day fireworks in my opinion.
I've had my dad visit me for a month. I've had my besty come over for a visit from the middle east. I've done a Spanish cooking class with my other besty. We have birthdays coming up (me & the hubby) we have weddings coming up (soooo excited for both) which also means Hen's days, new frock's !! eeks! And tonight I get to dine at WA Government House with the WA Gov. General to see my MD receive an Australian award. Life is pretty damn good at the mo.....
my multiple myeloma journey and other happenings - vixenaus
On 24th January 2012 I was diagnosed with Multiple Myeloma. This came as a complete shock to me and my family. But once diagnosed I decided to put fingers to keyboard and record the journey. Hopefully helping anyone out there understand the side effects of the chemo and drugs involved, but also to be able to share my feelings with my family and friends who are spread across the globe and can't be by my side......
Thursday, 12 February 2015
Wednesday, 21 January 2015
Canada to India.....Australia to Cornwall.....Singapore to Hong Kong.....From the West to the East.....From the rich .....to the poor.....Victoria loved them all........
What do you do when you find a post that was started.... not finished.... added to and then neglected? ..... I found this entry today, I'd forgotten about it. But here it is anyway as it continues to tell the story of one moment in time - albeit almost 3 months ago now.
I've been feeling very melancholy this week. It's a little tough at work at the moment.... although I'm pretty sure I'm not alone there. It a tough market for all mining services companies .....
I had an appointment with Dr Ben. All good (as usual) .....afterwards I went for my Zometa infusion. I thought maybe I was almost finished with these, but it appears I will continue with Zometa for quite a while (like the next year or two). Not that it is an issue for me at all. But it can mentally be difficult sometimes to sit in the chemo ward having an infusion. That constant reminder that you're not "quite" free of it. It's a lonely place on the chemo ward. I've recently changed to a new one at a different hospital. It's very close to work so I can walk there from my office and be back at work straight afterwards. However the vibe is different at this one. It's just a bit quieter..... and darker. I took work documents with me to pass the time. It's much easier to actually get some work done at hospital than in the office - no interruptions or phone calls !!
The other thing that affected me was the sad news of a very close friend losing her dad suddenly. I'm not going into it here as it's not my place to. But needless to say, it reminds me of how precious life it and how devastating it is when you lose a parent..... it's made me constantly think of mum. I guess when you start thinking about all the fun and frivolity of the Christmassy weeks ahead, you automatically think of family too. (well I do... I'm lucky I guess)
Which does lead me to happier moments.... like Christmas.... pressies...... mistletoe & wine.... I just LOVE Christmas. I love the decorations, the lights, the parties, the gifts, the laughter, the food. Please don't get me wrong. I know there are people less fortunate in the world. There is sickness, war, poverty and all sorts of awful happenings around our globe..... but I am an extremely lucky person and I am going to appreciate that fact by having fun and making the most of it. I am bringing back Advocaat !!!(If I can find it)
{insert 2 weeks later}
So that was 2 weeks ago..... I forgot to click on "publish" and there it sat, just a little lonely post.
It's been a busy couple o' weeks ! Work has remained the same..... tough. Christmas is well & truly underway. The decorations are all up, three trees and twinkling lights everywhere. We had our annual Christmas party. Entertained a few friends who ate their way through 25Kg's of Meat in Hot Roast Rolls. But some sad news..... I wasn't able to find the Advokaat !! devo.... but Christmas isn't here yet, there is still time to hunt for some.
I've been feeling very melancholy this week. It's a little tough at work at the moment.... although I'm pretty sure I'm not alone there. It a tough market for all mining services companies .....
I had an appointment with Dr Ben. All good (as usual) .....afterwards I went for my Zometa infusion. I thought maybe I was almost finished with these, but it appears I will continue with Zometa for quite a while (like the next year or two). Not that it is an issue for me at all. But it can mentally be difficult sometimes to sit in the chemo ward having an infusion. That constant reminder that you're not "quite" free of it. It's a lonely place on the chemo ward. I've recently changed to a new one at a different hospital. It's very close to work so I can walk there from my office and be back at work straight afterwards. However the vibe is different at this one. It's just a bit quieter..... and darker. I took work documents with me to pass the time. It's much easier to actually get some work done at hospital than in the office - no interruptions or phone calls !!
The other thing that affected me was the sad news of a very close friend losing her dad suddenly. I'm not going into it here as it's not my place to. But needless to say, it reminds me of how precious life it and how devastating it is when you lose a parent..... it's made me constantly think of mum. I guess when you start thinking about all the fun and frivolity of the Christmassy weeks ahead, you automatically think of family too. (well I do... I'm lucky I guess)
Which does lead me to happier moments.... like Christmas.... pressies...... mistletoe & wine.... I just LOVE Christmas. I love the decorations, the lights, the parties, the gifts, the laughter, the food. Please don't get me wrong. I know there are people less fortunate in the world. There is sickness, war, poverty and all sorts of awful happenings around our globe..... but I am an extremely lucky person and I am going to appreciate that fact by having fun and making the most of it. I am bringing back Advocaat !!!(If I can find it)
{insert 2 weeks later}
So that was 2 weeks ago..... I forgot to click on "publish" and there it sat, just a little lonely post.
It's been a busy couple o' weeks ! Work has remained the same..... tough. Christmas is well & truly underway. The decorations are all up, three trees and twinkling lights everywhere. We had our annual Christmas party. Entertained a few friends who ate their way through 25Kg's of Meat in Hot Roast Rolls. But some sad news..... I wasn't able to find the Advokaat !! devo.... but Christmas isn't here yet, there is still time to hunt for some.
Tuesday, 25 March 2014
I drink a little more than recommended....This world ain’t exactly what my heart expected....Tryna find my way someway, oh I, oh I, oh I.....
Hello, my name is Vicky and it's been 257 days since my last blog !! <inset round of applause here>
I don't know why I stopped writing my blog. Maybe because it was a bit of a reminder of "sick times" and now I'm well.... maybe I just got lazy (more likely) or just caught up in the rat-race again.....I also think that when I first intended to write my blog, it was going to be about my journey through chemo, stem cell transplant etc. In the hope that my story might help someone that is going through things alone..... I know my journey isn't over, but I don't want to bore people. But then I guess you don't have to read if you're bored ! <yawn> Maybe I just got caught up again in the rat-race called living !! I can say though that in the past 257 days since my last blog I have been to South Africa, Thailand / Koh Samui, New Zealand, Toronto, Montreal, Vancouver and in just a few short weeks will head to Bali. So not a bad rat-race really.....
So... what now? I've decided to continue writing, if and when I feel the urge. I constantly blog in my head. Meandering thoughts about what I would write each day... but then forget when I'm near my computer to write it down. So I may do random blogs.... some short, maybe just the odd picture here and there.... or a new song I've just heard that tickles my fancy ! (Thanks CT for the title song )
The past 257 days have also bought an abundance of births and marriages amongst our friends. I am proud to be "Aunty Vix" to so many new additions. Dirk & I are more than happy to entertain and enjoy watching the new kiddlies - but no, this doesn't mean we have changed our minds. We can hand them back as soon as the A) Cry, B) Smell, C) I get Bored !! It's the perfect solution. But we still get to spoil them and get cuddles and giggles..... so blessed.
I'm still taking heaps of pic's. Not one everyday, but especially since I've been on the road so much. And I'm cooking a lot. I've noticed this seems to be one of the major hobbies that I enjoy and helps me wind down after work. We've been eating some pretty shit hot food lately (even though I say so myself !) and I have been going mad cooking curries, bread and cup-cakes. Dirk & I are still attending our cooking classes. This year, we're doing "meat" classes (sorry to all you vegetarians) The classes are pretty amazing... learning about different cuts of meat and tasting them. The class is taken by a local (very well known and popular) butcher.
Oh and I forgot to mention... my health is still good. I've just about finished having Zometa infusions now and my blood test results have not shown anything out of normal range for the past year. (Yay)
So there it is... a boring blog about nothing..... but for those of you that take the time to read it - thank you. And I guess it's good to have nothing to write about other than travel, good health and cooking.... especially given the reason for starting it......
Thursday, 11 July 2013
Tell the bar that we don't want no glass .... Just bottles and i'm buying everybody one each ........ Yes so bring the Veuve Clicquot ....... D about to hit the big 3 0 ..... Party like it's Carnival in Rio ...... Life's too short, Danny Devito ...... Yo, we live, we die, we give, we try, we kiss, we fight ....... All so we can have a good time .......
Hellloooooooo !!
For ten years !!!
It feels like it has been that long since my last post. It's funny how caught up in life I have once again become now that the drama has passed. It's like it never happened. Last year is definitely just a distance memory. I've even stopped saying things like "just think, this time last year ...." It briefly comes to mind, but is just as quickly dismissed as more important things come up.
Life is back in the fast lane. I have started traveling again (for work) Had a quick round-the-world stint to Vancouver - London (incl. a quick weekend at "home") - Dubai - Perth. Although the final legs took their toll on me and I came home with sore throat and head cold. But other than that all good. Not to mention the new suitcase I had to buy so I could fit my purchases in !! Note to self... buy a bigger suitcase for next time and take nothing !!
I have to have a rant though.... this morning I was on the way to work and this cyclist was all over the road. Weaving in and out of cars.... when he felt like it, he was on the footpath, when he didn't he was on the road.... and then, because my wheels went over the short starting point of the bike lane (literally a 15M long bike lane) he whacked my car roof and abused me. Needless to say my middle finger went straight up. My gutter mouth shouted abuse at him and I carried on. But it's one of those moments that leaves you fuming. There were so many things I wanted to shout at him. Like "make up your mind if you want to be a car, pedestrian or cyclist ...... you twat" or "you look like you've sharted in those ridiculous bike pants..... loser" but the one thing that cyclists have over us is that they can be off pretty quick and they all look the same so you can't report them.
Rant over.
It appears I might be aging !! WTF ?? Yes how could that happen? I ask myself the same question every single day..... for the past 7 months I've had a pretty bad case of tennis elbow. Now for those of you that know me, you will understand. I mean, if it wasn't for my passion for school and work I would have been a tennis superstar !! And my prowess on the tennis court on a regular basis has left me with a poorly elbow. I've been on anti-inflammatory pills every day, tried acupuncture, massage and physio, but nothing has helped. Dr Ben sent me for more blood tests and x-rays but nothing. So he referred me to a rheumatologist. I have now had further blood tests, another set of x-rays and an ultrasound. And guess what?.... it's tennis elbow !!!! I also have a touch of osteoarthritis in my hands, which is basically bought on by age !!! $1000+.... thanks for coming !! I could have looked in the mirror, checked out the crow's feet and given that diagnosis.......
On a brighter note though, my blood tests continue to be amazingly normal. Dr Ben couldn't stop grinning at my last appointment. I think I'm actually his poster child !!
So going backwards in time again, my work trip had some amazing moments. I was able to spend a weekend at "home" with my bro, sil and family. Unfortunately dad was away so we had to have a party at his house without him. I was able to catch up with friends who couldn't make it to our wedding in Jan. People that I grew up with and also helped mum in her last few months. It was also the anniversary of mum's death while I was there. I was soooo nervous about getting to England. I hadn't been back since before "everything". Last time I was there was Dec2011 when I surprised mum with a visit because she was sick. I was scared about the feelings I would have when I got there. I spent the first two hours of the flight from Vancouver to London crying under a blanket because I was petrified. But when I got there it was all good. It was not scary, it wasn't awful, it was nice to be home. It didn't feel strange..... On the Sunday we went to mum's "memorial place" it's not really a grave, and besides I could hear mum in my head saying "Don't know why you're going there, I'm not sitting under the ground waiting for people to visit !!" But I wanted to put some flowers there, and my sis had asked me to take some tulips, so I did. It was a gorgeous sunny day. The kids ran around the church gardens and it was happy.
So after a few sunny tears, we decided to hit the pub for some lunch. Perfect and just what mum would have wanted us to do !! After that it was back down to London for more work.....
.... and after that I flew home... via Dubai !! OMG what a place !! It was amazing. My besty lives there so she picked me up and showed me around. I have never been to a place like it. The shopping... the buildings.... the service !! LOVED it..... needless to say my new suitcase took more of a beating !! If you ever get to go to Dubai, you must go out to "Brunch" on a Friday..... I can't tell you any more...... just do it - you'll thank me.
Next stop is our honeymoon !!! I cannot WAIT !! 2 weeks in Koh Samui..... sun....sand and Thai food - what more could a girl want. Not to mention a wedding too. It's going to be amazing, I just know it. It cannot come soon enough.
But in the mean time, it's back to work...... as I type my hands are aching and my tennis arm hurts................................... but that's just old age !!!
For ten years !!!
It feels like it has been that long since my last post. It's funny how caught up in life I have once again become now that the drama has passed. It's like it never happened. Last year is definitely just a distance memory. I've even stopped saying things like "just think, this time last year ...." It briefly comes to mind, but is just as quickly dismissed as more important things come up.
Vancouver |
Dream situation !! |
Rant over.
It appears I might be aging !! WTF ?? Yes how could that happen? I ask myself the same question every single day..... for the past 7 months I've had a pretty bad case of tennis elbow. Now for those of you that know me, you will understand. I mean, if it wasn't for my passion for school and work I would have been a tennis superstar !! And my prowess on the tennis court on a regular basis has left me with a poorly elbow. I've been on anti-inflammatory pills every day, tried acupuncture, massage and physio, but nothing has helped. Dr Ben sent me for more blood tests and x-rays but nothing. So he referred me to a rheumatologist. I have now had further blood tests, another set of x-rays and an ultrasound. And guess what?.... it's tennis elbow !!!! I also have a touch of osteoarthritis in my hands, which is basically bought on by age !!! $1000+.... thanks for coming !! I could have looked in the mirror, checked out the crow's feet and given that diagnosis.......
On a brighter note though, my blood tests continue to be amazingly normal. Dr Ben couldn't stop grinning at my last appointment. I think I'm actually his poster child !!
So going backwards in time again, my work trip had some amazing moments. I was able to spend a weekend at "home" with my bro, sil and family. Unfortunately dad was away so we had to have a party at his house without him. I was able to catch up with friends who couldn't make it to our wedding in Jan. People that I grew up with and also helped mum in her last few months. It was also the anniversary of mum's death while I was there. I was soooo nervous about getting to England. I hadn't been back since before "everything". Last time I was there was Dec2011 when I surprised mum with a visit because she was sick. I was scared about the feelings I would have when I got there. I spent the first two hours of the flight from Vancouver to London crying under a blanket because I was petrified. But when I got there it was all good. It was not scary, it wasn't awful, it was nice to be home. It didn't feel strange..... On the Sunday we went to mum's "memorial place" it's not really a grave, and besides I could hear mum in my head saying "Don't know why you're going there, I'm not sitting under the ground waiting for people to visit !!" But I wanted to put some flowers there, and my sis had asked me to take some tulips, so I did. It was a gorgeous sunny day. The kids ran around the church gardens and it was happy.
So after a few sunny tears, we decided to hit the pub for some lunch. Perfect and just what mum would have wanted us to do !! After that it was back down to London for more work.....
.... and after that I flew home... via Dubai !! OMG what a place !! It was amazing. My besty lives there so she picked me up and showed me around. I have never been to a place like it. The shopping... the buildings.... the service !! LOVED it..... needless to say my new suitcase took more of a beating !! If you ever get to go to Dubai, you must go out to "Brunch" on a Friday..... I can't tell you any more...... just do it - you'll thank me.
Next stop is our honeymoon !!! I cannot WAIT !! 2 weeks in Koh Samui..... sun....sand and Thai food - what more could a girl want. Not to mention a wedding too. It's going to be amazing, I just know it. It cannot come soon enough.
But in the mean time, it's back to work...... as I type my hands are aching and my tennis arm hurts................................... but that's just old age !!!
Tuesday, 19 February 2013
Somewhere in my heart there is a star that shines for you ...... Silver splits the blue ..... Love will see it through ....
Whell !! It's been sooo bloody long since my last post..... what can I say. It's been a busy time to say the least.
Happy Australia Day !!! What a year to review ....
This time a year ago, I was still in shock from being told I had cancer, about to throw a party & 2 days away from starting Chemo. On 29th Jan, my blog will be 1 !!
So what's been happening in the past 2 months ? ......not too much really !!!
I'm back at work full time, had my family over for numerous big hugs and lots of tears, met my new niece .... oh yes and I'm now a Mrs !! It's a great feeling. I married my (hash-tag) loveofmylife.
So that's about it. Short blog this month !! Hahha ... Yeah right !!
To expand, maybe just a little.....
<insert 3 week break here>
That was what I started back in Jan !! It's now 19th Feb and I am still struggling to find time to put fingers to keyboard. Life has been probably the most hectic I have ever known.... but not in a bad way, just a busy way.
My mind keeps skipping back to "this time last year". It was such a major time of my life. One of those times that I will never forget. Like the time Diana died, or 9/11 !! For me it was "that" significant. And I can't believe where I am now..... it's been one hell of a ride.
There have been some amazing times in the past 3 months. A lot of healing, a lot of tears, a lot of happiness and a hell of a lot of wine too !! Needless to say my family have been here !!! Not to mention some fabulous Perth summer weather and even more fabulous friends too. It really has been a whirlwind of emotions.
To review some of the happier times... I have to mention "I'M NOW MARRIED" yes.... me..... the spinster that was, is officially off the market !! Oh but you already knew that from my post above written last month !!
It was truly one of the best days of my life. Every time I think back I smile. I wish I could go back and do it all again over and over. Apart from the fact that I was an absolute Bridezilla. OMG .... looking back I thought I was handling things so amazingly well. I can assure you.... I wasn't !! Just ask my (nearly wasn't) husband. I can't believe what a wedding does to you ! It's actually very scary. There were moments when Dirk said he really wasn't sure that it was worth it. But in my world...in my little bald headed, "Miss Organised", "This is a Breeze" little world.... I actually thought I was coping like an angel sent down from heaven. Little did I know.... I wasn't !!! Take advice all you future brides out there..... No matter how great you think you are coping..... you're not !! BUT... having said that, at the end of the day, I wouldn't change a thing (except that one thing that I'm not going to mention in this blog ;-)
One of the most amazing things that I LOVED, was having my family and friends here. Words cannot describe how amazing it was to see people that I don't get to see all that often. My dad was here for a full 2 months. It was absolutely fanTASTic. I wasn't sure how it was all going to be, but it was awesome. In some ways, it was really amazing to get to know my dad for just him. I'm not saying I didn't know him, but I have never had the chance to spend time with my dad, just by himself. I loved it. He is an amazing person with such strength and character.....and dad if you are reading this... I love you more than anything.
Friends also need to be mentioned. The past year has really shown the many, many people in my life that I have met. I am one really lucky girl.
So ... in terms of my health.... what else? Well, I've had to have new geekster's (glasses). After a year of chemo, my eyesight deteriorated pretty fast. I'm putting it down to chemo and not old age !!
On a positive note, I have LOADS of energy, so have started walking daily. I'm really enjoying it (well as much as anyone can "really" enjoy exercise) My "husband" wakes me up at 6ish and we go for a 2-3km walk with the dogs. I'm loving the early morning coolness and once I get up and get going, I do feel better.
Work is beginning to take over pretty much all thoughts and waking moments. It is all consuming, but at the same time, I'm not hating it. At the moment, I'm learning the new aspects of my role. There is a lot of pressure and I'm having to find the best approaches via trial and error (more error's are being tested at the mo) but I'm still enjoying it.
The hardest thing of the past few weeks has been the most excruciating "Tennis Elbow" I'm having physio for it and it's helping a little but it's now been a good 4-5 weeks. I am thinking that I need to see a doctor though.....
One thing about being diagnosed with a form of cancer, is that nothing will ever be the same again when it comes to ailments. If there is a pain, I instantly assume it could be connected.
And that is where I'm at now.... after everything had settled down and I was in remission (7th Sept 2012 - yay) I started to get very bad tingling in my lower legs and feet. It was so bad that I would wake up at night because the sheets caught my feet and pain would shoot through my lower legs. Eventually I began to lose feeling and my feet now have about 30-40% numbness on the upper part of my foot (both sides) This happened around Oct /Nov last year. It has now begun in my hands.... I have started to get some pretty severe nerve pains in my hands. At first I thought it was due to the Tennis Elbow, but I'm beginning to think they may actually be separate issues. Who knows? So I'm going to make an appointment with my GP. I don't have another appointment with Dr Ben until April. I guess if my GP wants me to see him sooner, he will let me know.
I've been seeing a physio for a few weeks and she has "strongly" advised I book in..... so I will.
So....., in order to try and get this published and "out there" without another 2 month break, I'm going to sign off. People have been extremely gracious, asking me to continue my blog. Thank you. I must admit, I have actually missed it. Hopefully, I can get back into the swing of things and post a little more often again. It is very cathartic.
Happy Australia Day !!! What a year to review ....
This time a year ago, I was still in shock from being told I had cancer, about to throw a party & 2 days away from starting Chemo. On 29th Jan, my blog will be 1 !!
So what's been happening in the past 2 months ? ......not too much really !!!
I'm back at work full time, had my family over for numerous big hugs and lots of tears, met my new niece .... oh yes and I'm now a Mrs !! It's a great feeling. I married my (hash-tag) loveofmylife.
So that's about it. Short blog this month !! Hahha ... Yeah right !!
To expand, maybe just a little.....
<insert 3 week break here>
That was what I started back in Jan !! It's now 19th Feb and I am still struggling to find time to put fingers to keyboard. Life has been probably the most hectic I have ever known.... but not in a bad way, just a busy way.
My mind keeps skipping back to "this time last year". It was such a major time of my life. One of those times that I will never forget. Like the time Diana died, or 9/11 !! For me it was "that" significant. And I can't believe where I am now..... it's been one hell of a ride.
There have been some amazing times in the past 3 months. A lot of healing, a lot of tears, a lot of happiness and a hell of a lot of wine too !! Needless to say my family have been here !!! Not to mention some fabulous Perth summer weather and even more fabulous friends too. It really has been a whirlwind of emotions.
To review some of the happier times... I have to mention "I'M NOW MARRIED" yes.... me..... the spinster that was, is officially off the market !! Oh but you already knew that from my post above written last month !!
It was truly one of the best days of my life. Every time I think back I smile. I wish I could go back and do it all again over and over. Apart from the fact that I was an absolute Bridezilla. OMG .... looking back I thought I was handling things so amazingly well. I can assure you.... I wasn't !! Just ask my (nearly wasn't) husband. I can't believe what a wedding does to you ! It's actually very scary. There were moments when Dirk said he really wasn't sure that it was worth it. But in my world...in my little bald headed, "Miss Organised", "This is a Breeze" little world.... I actually thought I was coping like an angel sent down from heaven. Little did I know.... I wasn't !!! Take advice all you future brides out there..... No matter how great you think you are coping..... you're not !! BUT... having said that, at the end of the day, I wouldn't change a thing (except that one thing that I'm not going to mention in this blog ;-)
One of the most amazing things that I LOVED, was having my family and friends here. Words cannot describe how amazing it was to see people that I don't get to see all that often. My dad was here for a full 2 months. It was absolutely fanTASTic. I wasn't sure how it was all going to be, but it was awesome. In some ways, it was really amazing to get to know my dad for just him. I'm not saying I didn't know him, but I have never had the chance to spend time with my dad, just by himself. I loved it. He is an amazing person with such strength and character.....and dad if you are reading this... I love you more than anything.
Friends also need to be mentioned. The past year has really shown the many, many people in my life that I have met. I am one really lucky girl.
So ... in terms of my health.... what else? Well, I've had to have new geekster's (glasses). After a year of chemo, my eyesight deteriorated pretty fast. I'm putting it down to chemo and not old age !!
On a positive note, I have LOADS of energy, so have started walking daily. I'm really enjoying it (well as much as anyone can "really" enjoy exercise) My "husband" wakes me up at 6ish and we go for a 2-3km walk with the dogs. I'm loving the early morning coolness and once I get up and get going, I do feel better.
Work is beginning to take over pretty much all thoughts and waking moments. It is all consuming, but at the same time, I'm not hating it. At the moment, I'm learning the new aspects of my role. There is a lot of pressure and I'm having to find the best approaches via trial and error (more error's are being tested at the mo) but I'm still enjoying it.
The hardest thing of the past few weeks has been the most excruciating "Tennis Elbow" I'm having physio for it and it's helping a little but it's now been a good 4-5 weeks. I am thinking that I need to see a doctor though.....
One thing about being diagnosed with a form of cancer, is that nothing will ever be the same again when it comes to ailments. If there is a pain, I instantly assume it could be connected.
And that is where I'm at now.... after everything had settled down and I was in remission (7th Sept 2012 - yay) I started to get very bad tingling in my lower legs and feet. It was so bad that I would wake up at night because the sheets caught my feet and pain would shoot through my lower legs. Eventually I began to lose feeling and my feet now have about 30-40% numbness on the upper part of my foot (both sides) This happened around Oct /Nov last year. It has now begun in my hands.... I have started to get some pretty severe nerve pains in my hands. At first I thought it was due to the Tennis Elbow, but I'm beginning to think they may actually be separate issues. Who knows? So I'm going to make an appointment with my GP. I don't have another appointment with Dr Ben until April. I guess if my GP wants me to see him sooner, he will let me know.
I've been seeing a physio for a few weeks and she has "strongly" advised I book in..... so I will.
So....., in order to try and get this published and "out there" without another 2 month break, I'm going to sign off. People have been extremely gracious, asking me to continue my blog. Thank you. I must admit, I have actually missed it. Hopefully, I can get back into the swing of things and post a little more often again. It is very cathartic.
Tuesday, 30 October 2012
(Go West) Sun in wintertime ….. (Go West) We will do just fine …..(Go West) Where the skies are blue ….. (Go West, this is what we're gonna do) ……
Date Night - Celebrations |
I stopped wearing hats a few weeks ago. The weather is getting warmer and I just couldn't be bothered any more. After surviving the supermarket fiasco, I figured it couldn't get any worse than that so now I am the proud owner of a head of "bum fluff" as my dad calls it !! It's actually quite liberating once you get used to it. Nothing messes up my hair and I don't have to worry about colour, styles, humidity etc etc. !!! I just rub some sun screen though it and walk out the door.
So .... on Friday 19th October 2012 (which would have been my nana's 110th birthday) I went back to see Dr Brad - hopefully for the last time. We walked into his office at 9am (for our 8:30am appointment) and sat down. And he had the BEST news ever !! Everything had come back clear !! The bone marrow was good. My bloods were all normal, my Kappa results were 11 (they were 402 when I was diagnosed) The news was amaze balls !!! Totes amaze balls !!! I actually got up and hugged Dr Brad. He was also beaming from ear to ear. So that was that. All over.... he said he was very proud of me (such a nice Dr) and that he couldn't have been happier. I know not everyone gets as good a run as I have had. I've been extremely lucky for it all to have gone so well.
Next step is to go back to Dr Ben. Dr Brad was going to send the final report back to him and said to make an appointment soon - within the next 6 weeks - for a follow up.
When I walked out to reception and they asked if I needed a follow up appointment with Dr Brad I almost screamed "NO !! I DON'T NEED ONE, I'M IN REMISSION AND AM DISCHARGED !!" The girls on reception were all happy too. I had my Zometa appointment so Dirk left to go back to work and I went through to have my infusion. This will have to continue for a couple of years. But I don't mind that. If it keeps me healthy and strong I'll do anything. I may have to go on a maintenance drug.... Dr Brad thought maybe back on the Thalidomide, but after telling him about my numb feet, he said to really think about it and discuss with Dr Ben. As this was probably the cause, he wasn't sure it would be a great idea as it could continue to get worse.
I've also started back at work - in my new role too - Global Sales Manager !! Sounds very fancy hey !! Hmmm... I'll let you know just how fancy in a few months !!! It's been really full on since I got back. I'm still doing parts of my old job PLUS the new role all in 3 days a week. So I'm not sure if the total exhaustion is coming from my transplant or just plain old "back to work" !!! Probably both if I'm really honest. But so far it's going OK.
Food at 1907 |
Cricket is also back on, which means there have been a couple of catch up's at the club !! And then there's just the day to day celebration of life itself !! (a good excuse methinks) But I've realised that I don't have the capacity to drink as much any more. I just need to remind my brain of this fact before I fall over !! A challenge for me...... I totally blame my parents though.... its a genetic thing !!
Other than that, wedding plans seem to be coming along. I'm still not sure if I have everything covered or not. We went out to the wedding venue last weekend to chat about the day. I must admit, it's all seeming a little too easy. I'm pretty sure I must have forgotten a whole heap of things.... I guess I'll find out on the day.
Mexican Night - Ole !! |
Dad is on his way to us now. And this is one person I can't wait to see. It will have been almost one year to the day since I last saw him. I went back to UK last Dec to surprise mum when she was sick. I just turned up on the doorstep and rang the bell. They didn't know I was coming. That was the last time I saw dad, and that was also when my back pain started to get really bad too...... it's amazing what can happen in a year !!! But just to see everyone is beyond exciting for me at the moment. Just the thought brings tears to my eyes.
Just 63 days to go.......
Special Friends..... in stripes !!! |
Friday, 5 October 2012
From the highest mountain of valley low ..... We'll join together with hearts of gold ..... Now the children of the world can see ..... This a better place for us to be .....
We stopped at Bunbury on the way home to watch the Grand Final with some good friends (thanks Shopper & Bill) It was the perfect end to our break. No stress and a good laughs. Not to mention party pies, sausage rolls, dim sum & prawn toast.... mmm. The perfect accompaniment to footy. And as soon as we got home and picked up the pups from their first ever "kennel" experience, we settled back into home life,
Does anyone watch the show 'The Big C' ? Laura Linney and Oliver Pratt? I've been watching it for the past few weeks. It's about a woman who finds out she has Melanoma - stage 4 - and the affects it has on her (and her family) It's a bit of a black comedy...... I like it. A little addicted at the moment. And It's scary how much you can connect/relate to some of the scenario's.
Another digression !!! .... so we had the "mini-break" and then the long weekend. Sunday, we decided to paint our bedroom. For years I have wanted a "duck-egg blue" room. So we went to Bunnings and picked out the paint (or rather Dirk allowed me to select the colour I wanted) And Sunday, we got up and started painting....... But instead of "duck-egg blue" the colour appears to be "Tiffany & Co blue" !!! Still nice.... but not exactly what I had planned.......
And then back to reality. Last week I had been for blood tests as I was having the most tremendous aches and pains in my joints. So much so, that they were waking me up in the middle of the night. I happened to mention it to my nurse so they sent me for blood tests to rule out Ross River Virus, Lupus, Osteo-related issues, Rheumatism, whinging etc etc.... Turns out it was just whinging !!! Nothing else. Which I guess is a good thing. So panadol and nurofen were prescribed. It seems to be a little better..... but not much !! It may be the extra painting etc that I have been doing..... but I'm not sure.
Today was BMA day !! (Bone Marrow Aspiration) This one was supposed to be a good one though as Dr Brad said he was going to perform the biopsy to ensure a good result. Apparently the last sample they got wasn't the best so he wanted to make sure this time it was a good one. We arrived on time and he was ready for us. After asking if I wanted to be sedated and then telling me I didn't (!!) we got straight into it. Anaesthetic into the area then hammering into the bone to be able to take a core sample out. Not the most pleasant of experiences to ever go through. But Dr Brad had obviously done this a thousand times as he got it over and done with pretty quickly and tried to talk his way out of any pain I may have been experiencing. I have to wait two weeks for the results. We are hoping for zero cancer cells in the bone marrow which will confirm successful stem cell replacement and remission. After that I'll continue with Zometa infusions and probably 3 monthly blood tests indefinitely with Dr Ben.
We left the hospital with a small bandage covering the spot that he hacked into my spine. Dirk went back to work and I decided to walk off the pain with some retail therapy. Earlier, I had decided not to wear my hat to the hospital. I was feeling a little braver as my hair has very slightly started to sprout a little. And besides.... wearing a hat can be warm and just a little bit boring !! So when I got into the shopping centre, after the 5th store, I decided to take my hat off and walk around with my newly sprouting hairstyle !! It was the first time I had done this - especially without Dirk on my arm. I've taken my hat off at cafe's and restaurants. But not alone, and not walking around. I was feeling a little intimidated (it was also school holidays) But I figured "fuck it" I can do this. It wasn't until I got into the supermarket and some kid started shouting "MUM...... WHY HASN'T THAT WOMAN GOT ANY HAIR" that I started to feel paranoid. Why is it that an innocent child can make you feel like a freak !!!? His mum did the fastest supermarket sweep I have ever seen. There were skid marks next to the milk aisle !!! By this time, I was too mortified to get more shopping, but too proud to put my hat back on, so I grabbed the last few things I needed and headed out of there. I got back to the safety of home, my pups and a glass of vino. And tomorrow I might try going out in public without a hat again. Especially if it's warm.........
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