I've been very busy at work this week, and actually feeling relatively good too. I kind if wish I'd felt this good last week, but hey.... shouldn't complain. And so.... with feelings of normalcy has come 10 hour days at work. It's been just like the old days !!! .and I've kind of enjoyed it .. oh hello Suggs :-) !!
I had my Dr's appointment today, he's going away on Saturday to UK for 4 weeks so I'll be going it alone until he gets back. But the results from my bloods were going well still. This month I'm at Kappa 144 mg/l (down from 175mg/l last visit) So pretty good... still dropping. We asked him about what level it needs to be at before starting the stem cell replacement, he said that it didn't need to be at any particular level, just consistently dropping. Which it is. I think he forgot to send through the referral to the Stem Cell Dr as he didn't have a copy of it, and asked me to fax through the referral letter he gave to me so he could follow up.... Dr's !!! He is still thinking only a couple of months away until I start that. All our other questions were answered and I got my new scripts for more chemo and my next appointment booked for Zometa (eeuuww) I told him about my shakes and really bad chemically druggy feelings and he has told me to drop the amount of Dexamethsone that I'm taking. I was concerned that if I started taking less then the chemo won't be as effective, but he assured me that there have been good results from other people taking these amounts. So now I only have to have five Dexa's on the days I have it (which is days 1-4 & 12-15) I see him again on 24th April ......
I chatted to my bridesmaid in Dubai today - she put a big smile on my face, even though it was only a quick chat. Hopefully we'll be able to Skype later in the week and catch up. We may even discuss some wedding stuff !! I've been thinking that Dirk & I may have to start looking for wedding venues as that really is going to be the hardest thing to book. So a trip down to Margaret River may be in order :-)
Cricket finishes this weekend - and I won't lie to you, I am just a tiny bit happy about it !!! We get our weekends back and can do stuff.... like go down south for a weekend maybe. I've asked Nickers to look out for any dresses she might like. As I have absolutely no idea what bridesmaids might want to wear. Not even the colour scheme..... maybe a Skype call will be a good idea !!! Or maybe I should get a wedding planner... hmmm......
This weekend is going to be all about cricket finals. Hopefully there'll be a few of the wags down at the club. And hopefully there'll be some champers organised for us all. It goes over Saturday & Sunday so I'm thinking Sunday will be the day for me. Saturday I'm hoping to go for a facial / massage / pedicure somewhere.... if I can get in at late notice. I'll have to see if I can find somewhere nice. And then I think a little lie in the sun will be in order. It's definitely beginning to cool down now. When I tell you the temp... you people in the colder climates are going to scoff at me..... but Perth people know what I'm saying !! Today was only 26C !! thats cooling down. Sat & Sun are looking to only be 24C & 25C - that's almost jeans and jumper weather !! brrrrrr........
I found my old diary the other day - written every day from 1987 to 1989..... this day in '87 my best friend had to have her dog put down :-( very sad (Ser that was Copper) and on this day in '88 I was on a beauty therapy trip to Blackpool !! We all went there to watch hair competitions (yep I really did) but afterwards when it was time to leave, we had to leave without two of the girls as they didn't come back to the bus.... (Sam & Sioban) haha .... for those of you that know Sammy, no surprises there !!! Hilarious. I think they might have nipped for a quick drink and then got lost trying to find the bus !! They got the last train back and got in at 2:30am !!! those were the days...... there is some VERY juicy stuff in this diary.... I might share some more..... but then I may have to kill you !! <joke>
Well seeing as it is now 1:50am, I think I might try and get some shut eye..... we got our new chairs today for the new table - I think they look fab....
On 24th January 2012 I was diagnosed with Multiple Myeloma. This came as a complete shock to me and my family. But once diagnosed I decided to put fingers to keyboard and record the journey. Hopefully helping anyone out there understand the side effects of the chemo and drugs involved, but also to be able to share my feelings with my family and friends who are spread across the globe and can't be by my side......
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