Thursday 26 July 2012

In this life long and hard though it may seem ..... Live it as you'd live a dream...... Aim so high...... Just keep the flame of truth burning bright.......

  I've been awake since 4am. A lie in really seeing as the past week I've been waking up at 02:21am !! I played solitaire on the iPad for a while and then thought "blog" .... why not?
Actually, I think I drank too many SSB's last night, so I also have a bottle of nutrient water open to re-hydrate before work today !! .... I know... I know.... shouldn't have done that !! I will never learn !!
The insomnia has been a little frustrating.... I have no idea why I'm waking up in the middle of the night. I'm not on any specific drugs at the moment so you'd think I'd be sleeping like a baby - or maybe I am.... just a newborn that wakes up every four hours !! doh !!
Dad sent a letter to his friends this week. It was so beautiful, but made me cry so much too. If anyone can write a beautiful letter it's dad. This is the time where everyone gets back to normal ..... but when we are left with a massive gaping hole in our lives where mum used to be. I think this is the hardest time of all. I can't imagine how hard it is for dad. If there's one thing I can't wait for it's that big hug that he's bringing to me in a couple months.... flights are booked for dad.... and also brother and sil (sis-in-law) !! WAHOOOO talk about exciting. Looks like that wedding might just be taking place after all.
Talking of flights booked..... we've also used some frequent flyer points to get my sister out from NZ to be a carer for me. Hopefully this will also help Dirk out from doing all the work.
We've been absolutely paranoid this week..... half of Perth seem to have come down with flu ... people are walking around town germ infested and coughing all over each other..... so far we've been lucky avoiding it. But then on Monday Dirk came down with the beginnings of flu.... I went into meltdown and barked orders at him about how to get better and getting to the Dr's. Luckily he was able to get in to see our Dr. and he was put on antibiotics. We haven't touched each other since and I've already gone through a can of Glen20 !! The last thing I want is to have a delay on next week's treatment. I just want to get through it and focus on getting better. 
Had bloods done yesterday and have an appointment with Dr Brad tomorrow. Then Monday it's more bloods. Tuesday is the day I have the cannula fitted then straight back to the ward for the Melphalan (chemo) infusion. Wednesday is a "day off" before the Thursday stem cell implant. I am then sent home to recover - being closely monitored by everyone. Sounds pretty simple to me !!! 
OK... I have to interrupt this serious talk as there is an ad on TV for "Magic Mike" mmmmmmm - this might have to be my "recovery movie". When I'm having a bad day, Magic Mike will have to be played. It could be the only thing that makes me feel better.... except Dirk of course !! <cough> of course. 
Where was I ? .... skin peeling.... another side effect I've begun to experience. Not quite as nice as Magic Mike..... reality is a bitch !! 
Well it's time to get up now and get to work. I have two days left before the break...... 
I'll try and blog as much as I can over the next few weeks. You may not get pictures and long updates but will do my best..... 
Winter Beach Day
First time in the Ocean




In this life long and hard though it may seem ..... Live it as you'd live a dream...... Aim so high...... Just keep the flame of truth burning bright....... - M-People - Search for the Hero Inside Yourself