Wednesday, 8 February 2012

Memories ..... like the corners of my mind ...

It would have been Grandad Ray's 92nd birthday today. A good innings as people would say. He made it to 90 years before he was caught out at 1st slip !! You see we've always been under the assumption that our family were pretty much immune against everything. There's not been a history of anything in our family that we know of .... other than old age !! Happy Birthday Grandad. I think of you lots and miss you.

I've always had the feeling that I'm being "watched over" and the other day Charlie went crazy barking at a vacant spot in the kitchen.... I was sure someone was "there" with us. I asked who it was.... was it Grandad Ray or Grandad Tom?? wasn't sure but someone had come to visit. Even Dirk (the sceptic) got goosebumps. Maybe when our cleaning lady comes tomorrow I'll ask her. She told me the first day she arrived that she'd have to make friends with our spirits in the house before she could come and clean..... coockoo..... !!! My friend asked if I wanted to go and see a clairvoyant ..... I'm not sure though.... is it a good idea or a really bad one?

Today has been another day of really really weird feelings. I started back on the Dexamethsone today, for the next four days..... it's like a Demi Moore diet ! Although I don't need Red Bull or incense !! I've been working from home in the hope of getting some work done that is overdue and needs to be done without too many interruptions. But having said that, I really don't think I could drive at the moment. Talk about a fuzzy head... OMG !! beyond fuzzy today. And also headaches today :-(  its like the most intense coffee / Red Bull fix you can imagine. Every blood cell buzzes around your body, your eyes feel thick (it's all I can think of to describe the feeling) and I felt intensely irritable. Yes, I know that could be just normal me.... but I thought I'd blame the drugs..... because I can ok !!!!

OK.... so here's some really good news. It's probably something that everyone will be thinking "So why didn't you start with the good news??" and by now you're thinking "Come ooonnnnnn..... what is it??"
so anyway, today I had my appointment with Dr Ben. And he had my blood results..... my light chain protein tests showed my levels had dropped from 402 to 317 !!! YAY !!! this is great news. Normal range is 3.3 to 19.7 so I have a little way to go, but Dr Ben said that to get these results after just 10 days of chemo was better than he expected.... so yay me :-) He also said how pleased he was to see me looking good and looking happy - better than two weeks ago..... well considering he had just given me the most devastating news I'd ever received two weeks ago, I'm not totally surprised !!! but hey, he was happy, so I was too.

So we took my friend Nixon out to celebrate at our little local "Blend" tonight & had a funny night laughing at stories from days gone by..... like the one about sitting at The Body Shop HQ in the Blue Sky Room watching Nixon fall asleep on the Area Manager and Snapper hold back the biggest spew....... or the time we were at a club and I was apparently having a nana nap until Duran Duran "Wild Boys" came on and all of a sudden I was there jumping around singing..... (year right Nickers... I'm not sure that one is totally true) but giggles were had so it was worth it. I still think we should write our book on the years between 1999-2001.... just change the names to protect the innocent (or guilty as it actually was)

My back is definitely getting better, it's not completely pain free yet, but the tumours must be shrinking as the past three days have felt better each day. Dr Ben said he thought my gait was better !!! MY GAIT?? WTF am I, a horse?? Who says that? So I reckon I can only milk the assistance card for another few days before I'll be back on the chain gang and cleaning the house and doing the laundry..... sigh.... oh well, I got a good 3 months so I suppose I can't complain too much ! DOH !!! The taste in my mouth is insane.... it's not the nicest feeling in the world. Worse than hangover mouth, more like when you have really bad tonsillitis but without the sore throat. You know when you've just had medicine in the morning before you've cleaned your teeth and you're left with a stale, furry rancid mouth..... a little like that :-) nice hey? !!

and so I leave you with Day 12...... my new disco USB Fan .... OMG Love it !!!








2 comments:

  1. Hi Vicki,
    Have you tried sucking some acid drops ( or pear drops)?
    One of the causes of bird cage mouth ( as in the bottom of) is lack of natural salivation due to the chemo.
    Pat

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    Replies
    1. Thanks Pat, I'm going to give that a go :-)

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