So today is Monday.... Sunday came and went far too quickly (as always). Spoke to sis in the morning for a daily update. Did the "drop in" on Nags for a glass of water (yes Nags & I drank water, but I think you can blame the Bextrum's the night before for that !!) and she has put me in touch with her sis-in-law's mum who also has MM. We are catching up for a chat next weekend - this is such a nice thing for me, to get to talk to someone else that has already been through what I am starting..... I've started a list of questions already !!
Sat and watched a bit of the cricket at South Perth, then back to the poolside to finish my 4th book of the year !! - gotta love Kindle.
Night time seems to be the worst at the moment, usually I can sleep through anything, but at the moment, if I wake up, that's it ! I'm awake mulling over stuff in my mind for the next 2-3 hours.... last night was no exception. I started wondering about all the side effects, you start noticing every twitch in your body and wondering if it's the drugs working. At the moment, my tumours are aching. It's as though I can feel the drugs attacking them and they are fighting it. But then again, it could all be just in my mind. Neurotic pondering's as you can see !! Woke at 2:41 and fell asleep as dawn was breaking.... only to be woken again at 7am by the guy coming to fix the pool leak (for the 4th time I might add... but that's a whole other blog !!!) So up and at 'em and off to work.
So far I've been feeling pretty flat today.... I'm trying to get in touch with my feelings and moods so I can recognise the signs and work on them..... but easier said than done. There's definitely plenty of work I can be doing to keep me occupied, but when the words "Mutiple Myeloma" and "Cancer" keep popping into your head without warning it's more frustrating than anything else. I keep saying "Fuck Off!" to them, but they're persistent little buggers.
Dr Ben's office called 1st thing to say I needed to go in urgently for another test. Apparently to dispense the Thalidomide I should have had a pregnancy test. They are not supposed to have given it to me unless it was all done. So had to dash down to SJOG Subi for a quick blood test and now back at work again.....
lunch is over so back to it......more later
Day 3 photo of the day....
The rest of the Monday passed with some mild feelings of despair hanging around... Dirk took me out to tea to cheer me up and was trying to lift my spirits, but I couldn't stop the flat feelings at all. Even closing a deal at work (from the restaurant at 8:30pm) didn't seem to appease the gloom.
So after taking my final pill for the evening I hit the sack and drifted off........
On 24th January 2012 I was diagnosed with Multiple Myeloma. This came as a complete shock to me and my family. But once diagnosed I decided to put fingers to keyboard and record the journey. Hopefully helping anyone out there understand the side effects of the chemo and drugs involved, but also to be able to share my feelings with my family and friends who are spread across the globe and can't be by my side......
Hey lovely lady. I think Mondayitis was going around today. Bit of an oops with the prego test before taking thalidomide! Thinking of you and sending you love. x
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